Full Conference Agenda

JUNE 7 - ARRIVAL / WELCOME RECEPTION

4:00pm – Hotel check-in

4:00pm-7:00pm – Welcome Reception (dinner provided) in the Spanish Oak Room

Bring the whole family and drop in for an informal gathering upon arrival. Grab some dinner and meet other conference attendees!

4:00pm-7:00pm – Registration Open in the Rotunda

Pick up your conference nametag and swag bag at the registration table in the Rotunda. Registration will also be open from 7:00am-8:30am on Saturday.

JUNE 8 - FULL DAY CONFERENCE

7:00am-8:30am – Registration Open: Pick up your conference nametag and swag bag

7:30am-8:30am – Breakfast in the Spanish Oak Room

8:30am-8:45am – Welcome & Foundation Update (Amy Robl)

8:45am-9:15am – Keynote Address (CC4C - Adrienne Ryholt)

9:15am-9:45am – KDM5C Genetics 101 (Dr. Catherine Keegan)

9:45am-10:15am – RARE-X KDM5C Data Collection Report (Dr. Zohreh Talebizadeh)

10:15am-10:30am – Michigan registry (Dr. Catherine Keegan & Dr. Kristen Lee)

10:30am-10:45am – Break

10:45am-12:30pm – KDM5C Lab Updates (25 min each, including time for questions)

Albert Einstein College of Medicine - Dr. Julie Secombe

University of Michigan Medicine - Dr. Shigeki Iwase

Van Andel Institute - Dr. Connie Krawczyk

SickKids, University of Toronto - Dr. Zain Awamleh

12:30pm-1:30pm – Lunch

1:30pm-2:00pm – Special Performance (Melissa McNeilly, Savannah Erekson)

2:00pm-2:45pm – Small Group Exchange A: Patient Groups by Age/Sex (facilitator: Amy Robl)

2:45pm-3:30pm – Small Group Exchange B: Family Topics of Interest (facilitator: Melissa McNeilly)

3:30pm-3:45pm – Break

3:45pm-4:00pm – The KARES 5K for KDM5C - How to Participate + Tips (Amanda Lowry)

4:00pm-4:45pm – Family and Patient Panel (moderator: Melissa McNeilly)

4:45pm-5:15pm  – Closing Remarks (Nobility in Action - Sucheta Kamath) 

5:15pm – Childcare pick-up

5:30pm-8:00pm – On Your Own for Dinner!

JUNE 9 - COMMUNITY OUTING

7:00am-7:45am – (Optional) Morning Movement & Meditation at the Spanish Oak Rotunda

Up early? Join us for some morning movement led by Board Member, Lara Erekson. Space is limited to 30 individuals, so please sign up to attend here.

8:00am-9:00am – Breakfast in the Spanish Oak Room

10:30am – Meet us at Morgan’s Wonderland for a family outing! 

Your ticket is included with your conference registration, so please check in under the KARES Foundation group list.

We have dual access to Morgan’s Wonderland and the Inspiration Island Waterpark. Feel free to explore the park at your leisure. From 11:30-2:30, the Lago Vista Party Room will be available to our families to rest and connect. The Lago Vista room is in the blue building with windows overlooking Inspiration Island. Pizza and drinks will be served at 12pm.